Recent research has unveiled some critical insights into the experiences of young people within the LGBTQI (Lesbian, Gay, Bisexual, Transgender, Queer/Questioning, and Intersex) community diagnosed with cancer. While the healthcare world progressively evolves, there’s an evident gap in understanding and supporting LGBTQI Adolescents and Young Adults (AYAs) affected by this challenging disease.

The study underlines how cancer disrupts the complex journey of accepting, exploring, and expressing LGBTQI identities. Many study participants reported feeling invisible, often stemming from deeply ingrained cis-heteronormativity in cancer care, which doesn’t account for the diverse experiences and needs of the LGBTQI community. Additionally, the prejudices they face outside the healthcare system only exacerbate their challenges, with many fearing discrimination or lacking family support due to their sexual or gender identities.

Furthermore, LGBTQI AYAs must navigate their developing identities in tandem with the repercussions of their illness. Often, they’re forced to place their identity exploration “on the back burner” during treatment, which can lead to distress. This is especially true when they don’t disclose their LGBTQI identity to healthcare professionals (HCPs) or face cis- and heteronormative assumptions in their care.

What this means for healthcare providers and services

The study illuminates a pressing need to revolutionize the care for LGBTQI AYAs with cancer. HCPs must acknowledge the broader socio-cultural realities that influence these patients’ experiences, breaking away from cis-heteronormative assumptions. By signaling inclusivity, facilitating disclosures, and offering tailored care that respects LGBTQI identities, relationships, and support systems, the healthcare system can make significant strides toward equity.

As our understanding of the unique struggles of LGBTQI AYAs with cancer deepens, the healthcare community must harness these insights to ensure every patient receives holistic, affirming, and appropriate care. It’s high time to bridge the gaps and prioritize the well-being of this marginalized group.

Read the Research