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Epi

ICD-10 and Genetic Conditions Are on Pause

What’s Changing, Why It Matters, and What Public Health Should Do Next The way the U.S. classifies diseases is quietly undergoing a rethink — and if you work in public health, health policy, rare disease research, or health equity, this matters more than you might realize. In late 2025, the CDC’s National Center for Health […]

The Economic Ripple Effect of Rare Diseases: How Artificial Intelligence Can Change the Narrative

Imagine the frustration of living with a mystery illness for years. Your symptoms worsen, your work performance declines, and your income takes a nosedive. All the while, you shuttle between doctors, waiting for a definitive diagnosis that feels perpetually out of reach. For millions of people worldwide with rare diseases, this isn’t a hypothetical scenario—it’s […]

Health equity

Addressing Inequities in Rare Disease Care

Imagine battling a rare disease that affects your daily life in unimaginable ways—only to find that the healthcare system, designed to help, seems more like an obstacle course. This is the harsh reality for many in the rare disease community, especially those from underrepresented populations like Black, Indigenous, and people of color (BIPOC), LGBTQ+ individuals, […]

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Tag: rare diseases

ICD-10 and Genetic Conditions Are on Pause

The Economic Ripple Effect of Rare Diseases: How Artificial Intelligence Can Change the Narrative

Addressing Inequities in Rare Disease Care

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