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Health equity

Addressing Inequities in Rare Disease Care

Imagine battling a rare disease that affects your daily life in unimaginable ways—only to find that the healthcare system, designed to help, seems more like an obstacle course. This is the harsh reality for many in the rare disease community, especially those from underrepresented populations like Black, Indigenous, and people of color (BIPOC), LGBTQ+ individuals, […]

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